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(Guest Contributors Mike Berkson and Tim Wambach – They blog at Handicap This!) Mike Berkson and Tim Wambach met in the summer of 2001.  Tim was hired to help Mike, a 12 year old with cerebral palsy, as his aide in elementary … Continue reading

Our Daughters Differences Lead Us to Stem Cell Therapy

(Guest post by Maria Barber –  Maria blogs at Mommy You Know What)

We have a little girl named Lila, who is 4 years old.  Through all of her struggles, she has taught my husband and I patience, perseverance, how to love no matter what the circumstances may be, and how to look at the differences in others as blessings.

Lila has cerebral palsy (CP).  CP refers to anything that affects the brain (i.e. lack of oxygen at birth, abnormal growth, missing segments of the brain that had not grown in the womb, genetic abnormalities that have affected the structure of the brain).  This diagnosis is a HUGE umbrella to fall under, so we continued to search, as Lila’s CP is very mild.  Until last November, when her neurologist read over her MRI from 2 years prior and realized that he overlooked a very important fact.  Lila’s cerebellum is smaller than normal.

The cerebellum controls muscle tone, balance, coordination, learning skills, speech, etc. Her differences have mostly been seen in her physical sense, walking with a walker and not being able to stand independently, and in her speech.  Your muscles control speech, nevertheless, she continues to push through and try to use her words in social situations with her peers and teachers.  Hopefully Lila will one day have the confidence to interact at the level of her peers, and process this interaction much more quickly than today.

These differences, along with the promise of stem cell therapy, have led us on this journey of fund-raising to help her to have a stem cell treatment this year, with the promise and hope for more stability and balance, better control and confidence with her speech, and faster processing to keep up with her peers.

Some of you may be thinking…,”she has abnormal growth in her brain, is it really possible that something can help her cerebellum to regain growth and heal?”  YES, and thank goodness!  When anyone has a part of their body that is growing slower than normal, this means that the blood vessels which surround this area are constricted, not bringing enough oxygen to that area.  Stem cells help to regrow/open up those blood vessels to bring more oxygen to that area and promote growth.  Stem cells have also been known to regrow neurons.  Lila’s cerebellum has a chance to grow and get her back on track in the event that we can all give her this gift of stem cell therapy.

Please check out her blog at Mommy You Know What.  This will explain more about our beautiful daughter, her struggles, her smiles, and our fund-raising efforts.  Please join us on our journey, and share our blog with others who may need to see the positive side of the world of special needs.  The beauty is in the eyes of our special children!

I will be sure to drop in again at Different Iz Good and give you all an update as to Lila’s progress.  Look forward to sharing with you all again :-)