About Susan

Hi my name is Susan M. I am the mother of 2 daughters. One is 17 years old and one is 7 years old. Both are very special girls. However, IM, the 7 year old has some extras in her package. She has Chromosome 18p-. What this means for IM is she has many medical concerns. She sees lots of doctors and goes to OT, PT, and speech. What this also means is that we are challenged daily to celebrate life as she does. There are MANY celebrations often. And we happy dance for them all. She loves to sing, dance, run, jump, play with friends and play pretend and teach us all about life in IM's world! In spite of the long list of might nots and probably wonts, she is a very bubbly and verbal and active girl. We celebrate life and differences daily. Thanks IM for helping us to focus! Hugs all! Susan

Different is…

(Guest post by Susan Moran –Learn more about Susan by visiting our Contributors Page)

Different is…

Different is the loooooooooooooooooong pause after you answer the question, “How old is she?”

Different is the questioning the new doctors have over why this “normal” child is on a liquid diet instead of table food.

Different is checking your schedule for doctor and therapists appointments before you plan a play-date.

Different is your darling explaining orthotics to her friends.

Different is the questions from the school-mates as to why she is acting like THAT.

Different is explaining “words” like IEP and GERD to your friends.

Different is saying; “Sissy, you are sweet I could pour you on my pancakes.”

Different is blowing Daddy hugs so hard he almost falls over.

Different is singing no matter where we are or who is watching.

Different is getting up and dancing in the restaurant when the Latin music moves you.

Different is chatting to the birds and animals on the walk and not noticing or caring who sees.

Different is saying my name is. What is your name? May I have a hug now?

Different is the one more hug, Mommy before you go.

Written by Susan Moran

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About Guest Blogger

This post was written by a guest contributor.  Please see their details on our Contributors page.  If you’d like to guest post for Different iz Good check out our Write for DIG page for details about how YOU can share your stories and tips with our community.

Different is Love

(Guest post by Susan Moran –Learn more about Susan by visiting our Contributors Page)

(©2009 Artwork by Lillian Darnell - All Rights Reserved)

Different is Love

Different is learning love is like a rainbow:

Full of colors and joy-
Full of experiences that upon memory are as colorful as a rainbow,
Full of expectations that upon collaboration are as colorful as a rainbow;
even though the collaboration changes the expectations beyond imagining sometimes,
Full of joy for all of the differences that no one could have predicted and yes, these joys are as colorful as a rainbow.
Different is learning love is like a rainbow, very colorful and full of mystery and joy.

Kaleidoscope

My journey with my darling daughter is like a kaleidoscope. It is a mixture of emotions at levels never before experienced or even imagined. She has taught me that love is joy. Different levels of joy and excitement over “small” things that others take for granted.

These joys occur on HER time table, not on the schedule from some developmental chart or some doctor or teacher’s notion of when is “right” for it to occur.

Love is those first independent steps that we had to wait an “extra year and a few months” for her to take.

Love is the pride that beams from every fiber of her being and through her soul when she “gets it” whatever the latest it is!

Love is the sheer, pure joy when my darling finally, after years of trying, jumps over that yellow bar at PT.

Love is knowing when to whoop and holler at her success and when to celebrate quietly so as not to interrupt the moment for her.

This kaleidoscope love of mine is wonderful. It is so full of color that changes and mixes and is constantly in flux.

I am blessed to have a kaleidoscope love child. Are you?

{Wanna share this with your Facebook Friends? Feel free to “like” it below and share with them by pressing here! Thanks y’all -Camilla}

About Guest Blogger

This post was written by a guest contributor.  Please see their details on our Contributors page.  If you’d like to guest post for Different iz Good check out our Write for DIG page for details about how YOU can share your stories and tips with our community.

Acceptance of Different

(Guest post by Susan Moran –Learn more about Susan by visiting our Contributors Page)

There are many things to accept in this world. We must accept different people, different cultures, different religions, different points of view, different methods of accomplishing tasks, different schedules, expectations, rules, directions, likes and dislikes and the list goes on and on and on.

In our house, one darling really needs help with accepting different expectations and different methods of accomplishing tasks. She likes sameness—it is comforting to know how and when things will be done. However, as stated above, this is NOT how life really works. So, I am challenged daily to help her embrace and enjoy flexibility. 🙂 To this end, I made up a song/chant with her in the car the other day.

I wrote a song to help IM deal with adjusting her evening schedule to include sitter time. She loves her sitter but still struggles with differences in routines and how things are done. All things should be done Momma’s way, don’t you know?! 🙂 So, here it is.

Izzy’s way, Izzy’s way
I like to do it Izzy’s way
Sometimes it’s dif-fer-ent,
But that’s O. K.,
I LIKE to do it Izzy’s way.

We also talk about how this song can help at school, at PT, at doctor’s appts, where ever things are different—we can sing this song and make it a good day. 🙂 It helped that night and another night too. 🙂

I bet you know some one who could use flexibility training too. 🙂

What will you do today to embrace, celebrate or help some one with differences?

(We would love to hear your thoughts in the Comment section and if you’d like to share with your friends on Facebook, just press here! – Thanks y’all –Camilla!)

A Sharky Christmas

IM

(Guest post by Susan Moran –Learn more about Susan by visiting our Contributors Page)

To the tune of Twelve Days of Christmas

A little back ground on why I re-wrote this song.  My daughter, IM has Chromosome 18p-. Part of what  this means is that she sticks with it, sticks on it and just basically gets stuck. So, she is learning the 12 Days of Christmas and is singing, singing, singing it!  Hey, you know, different is good!  🙂

So Monday morning a verse related to her school popped into my head, because this song will not leave my head now.  Her school mascot is the sharks, thus the first and last verses. Also, due to the shark theme, there is a fish tank in the main hall.

Well, IM’s first love was Elmo and Elmo’s fish is Dorothy. This tank has 5 Dorothy fish—do not try to change their names. They are all Dorothy—told you she gets stuck. 🙂 Well she used to feed the fish on “good days.” If you know goldfish, this is not good if it happens daily. Well, she was good LOTS! So, sick fish. Enter the best school secretary of all times! She bought a Beta Fish to sit on her desk because they can be fed daily.

Now, the best school secretary ever is a vegetarian. Why is this important? Because IM’s favorite food is pepperoni! And, wait for it…the vegetarian secretary named the fish Pepperoni! I think that is enough back-ground on the song….

On the first day of Christmas my true love gave to me a shark in shark tank.

On the second day of Christmas my true love gave to me 2 Pepperonis.

On the third day of Christmas my true love gave to me 3 Dorothy fish.

On the forth day of Christmas my true love gave to me 3 wiggly hamsters.

On the fifth day of Christmas my true love gave to me 5 smiling children.

On the sixth day of Christmas my true love gave to me 6 happy classrooms.

On the seventh day of Christmas, my true love gave to me 7 big recess balls.

On the eigth day of Christmas, my true love gave to me 8 great books reading.

On the ninth day of Christmas, my true love gave to me 9 children singing.

On the tenth day of Christmas, my true love gave to me 10 painters painting.

On the eleventh day of Christmas, my true love gave to me 11 jumpers jumping.

On the twelfth day of Christmas, my true love gave to me 12 bright red shark slips.

By the way, she wants to write verses 13-100 because 100 is her favorite number. Yes, for both versions. 🙂

Ciao from a proud and different Momma!